Paige Jayden is my sisters granddaughter in Tuscon, Arizona. She was born less then a month apart from my nephew Colton Taylor. When Paige was an infant she was diagnosed with Spinal Muscular Atrophy Type 1 (below is the description). Praise God, Paige has already outlived the doctors expectations by 2 years and is now growing at the rate of a normal 4 year old. She is also rapidly outgrowing her only form of mobility and has now become big enough that she needs a special handicap van for transportation. The family is holding a fundraiser to help pay for this new van for Paige. The family will be raffling off a handmade quilt along with other gift certificates as a part of this fund raiser..
If you are interested in making a donation for Paige, please go to:
http://www.bestfundraiserwebsite.com/registries/view/56816969
with this link, you will also see a picture of her and this message below:
Hello Everybody, Most of you know that I have a niece PAIGE. Well she will be 4 years old on December 31st. A very big step for her. Paige Jayden was diagnosed with Spinal Muscular Atrophy Type 1 at the age of 4 months old. We were given the worst news in our lives, this disease is fatal, with no cure, and that she would not live to be over 2 years old. She received a gastrostomy shortly after diagnoses and a tracheotomy at about 6 months old. She requires the use of a ventilator 24 hours a day and suctioning to remove secretions form her mouth and lungs. Paige is an alert, bright, intelligent child who attends Project Able at Marshall Elementary school. Like most 3 years old girls she enjoys being read to, watching TV,princesses, fairies, and "Fancy Nancy". She is loved and accepted by her family and all those who take the time to get to know her. Just a little info:Spinal Muscular Atrophy (SMA) Type 1SMA occurs when a vital gene (Survivor motor neuron gene SMN) is deleted or mutated preventing the creation on the protein necessary for muscle strength. A second, nearly identical copy gene SMN2 is present in all SMA patients. SMA is an autosomal recessive neurodegenerative disease characterized by a dramatic loss of spinal motor neurons resulting in muscle weakness, atrophy, and in the worst cases the ability to breathe and swallow. The mind is unaffected while the muscles waste away. Our family is looking for some help. My grandmother, Paige's Great-grandmother has hand made a queen size quilt and we are raffling off along with gift certificates in hopes to help in the expense of a wheelchair accessible van. Paige has gotten to big for her car seat and is very hard to get her in the car with all her equipment. The raffle will be held on her 4th birthday December 31st 2008 The tickets are 1 for $1.00 or 6 for $5.00 I would be happy to fill out the raffle tickets for you. We all thank you in advance,
Jamie & Family
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